We are pleased to announce the launch of the Ectodermal Dysplasias Registry! The Ectodermal Dysplasias Registry creates a platform for people around the world to strengthen their voices and share information about ectodermal dysplasias, a group of disorders that affect the development and function of the skin, hair, teeth, nails and sweat glands. The ectodermal dysplasias currently have no cure. Designed with the input of scientists and affected individuals, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve ectodermal dysplasias care.

Join now and let your data tell your story!